Finding your Dyslexic Tribe is priceless

Yet again I find myself in social media defending the usefulness of identification of Dyslexia. Also this week I have had to counteract a teacher saying learning difficulties don’t exist but that is another story. This has come at a time in my daughter’s life when she has finally found her tribe. As my daughter has just become a teenager and suffers from anxiety fuelled by multiple learning difficulties it has become so important that she feels like she belongs in this world. That she feels she is valued for who she is and what she can do. That there are other kids like her. Teens need to feel they belong as they navigate a difficult time in their life. As a high school teacher I have seen many times the sheer pain of the kids who don’t find their tribe.

My daughter attended a high achieving primary school where many kids are heavily tutored from preschool age and academic success was the number one priority for most of the parents. She had some lovely friends who valued her for her storytelling at lunchtime, her quirkiness and her kind heart. They would defend her endlessly when casual teachers had a go at her and make sure she understood her work. But one thing her friends could not do is understand what it is like to walk into a classroom everyday and struggle surrounded by children who seem to learn effortlessly.

Having me as a parent has given her access to a strong Dyslexic community and she has met many kids with Dyslexia which helped putty some of the holes in her self esteem battered by years of failure. She has the great privilege of having a tutor who has Dyslexia and is friends with her Dyslexic daughter. Her tutor says that her greatest qualification as a tutor is her Dyslexia and her ability to understand her student’s struggles. Not being able to read in year 5 and going on to get a Masters from Cambridge shows her students anything can be achieved if you work hard enough! Having adult and older teen Dyslexics to look up too is so important.

High school this year has brought many challenges, especially leaving friends who she has relied on for so long. But thanks to a school, who has a brilliant transition program for kids with difficulties, my daughter made some friends who get her before the start of the school year.

My daughter spent the holidays bonding with her new Dyslexic friends. She said to me E has a brilliant mind and she is even more awesome when she is not taking her ADHD meds. I said that must be lovely for her to hear that someone appreciates her for who she is. Her reply was that I know you tell me all the time how creative I am and how good my mind is but you are my Mum and you have to say that. For kids the same age to appreciate me for who I am it makes me feel good about myself. If she fumbles over her words she knows her friends will not judge her.

On the way home from an awesome time with one of her Dyslexic friends I said to her “You have found your tribe haven’t you?” Her reply was the biggest smile I have seen in a long time.

Her new friends all forget things. They all actually forgot that they had memory issues and laughed hysterically at that. They struggle through their work together in class. They go to learning support together. They complain about the teachers who don’t get it and praise the awesome ones that make school bearable by actually implementing their adjustments. They giggle when they can’t add up while playing games rather than hiding their weaknesses. While other kids in class are calling them dumb their friends are telling them the opposite and appreciating them for exactly who they are.

Through our support group my daughter also writes to another year 7 kid with Dyslexia who was feeling alone. They use snail mail. Her pen pal has lovely writing and she told her. She also told her she types because she has dysgraphia and her handwriting is not so good. They share struggles but also write about normal stuff. They both know no one is going to judge them for their spelling or grammar. My daughter actually smiles when she sees a spelling mistake in her pen pals letters.

The word Dyslexia has also as a parent allowed me to find my parent tribe. I have met some of the most brilliant Dyslexia advocates through my volunteer work. Determined mums mostly who are fighting to get the system to change after watching the horrible toll illiteracy has on our children. My daughter’s tutor has become a firm friend. She is one of the few people who get it when the days are hard and simple things go really wrong. We listen to the daily struggles of our kids without judgement and we know the other gets it!

It is quite lovely (I’m not sure how to describe it) to be around school mums who get your child’s struggles. Nothing gives me more pleasure than to sometimes be able to give advice and help to my new parent friends. Funnily enough last year I chatted online through our support group to one of the mums. Giving her advice about tutors in the local area. Then our daughter’s went to the same school and became friends and neither of us realised we had talked online and by then we had met in person. I know I’m not going to have to get embarrassed about grades. I know I can complain about my child’s resistance to getting her assignment done. I know I can talk about having to help my child structure her essays, research and edit without judgement. We were all feeling a little sick at the idea of an end to school holidays.

With these school Mum’s I don’t have to listen to what they think are their parent struggles when having just those struggles would make my week awesome. Like my sister’s endless turmoil choosing between selective high school and performing arts high school that my niece got accepted into. Oh the pure joy of a decision like that. Whilst at the same time I was meeting with learning support at the local High School grilling them with questions. Trying to find a high school that my daughter would be able to survive was my main goal. A high school where she didn’t come out with worse mental health and some of her self esteem still intact.

Other parents don’t really understand what it is like and nor do most of the relatives. Don’t get me wrong other parents have been supportive in the past but you can never understand the constant battles or the daily management needed with a child with Learning Difficulties particularly mixed in with the inevitable mental health issues. I know because I have another child who passes through life with a smile on her face and is absolutely adored by every teacher who has ever had her. She does not approach task with trepidation and the scars that constant failure bring. She approaches everything with determination and persistence.

Talking to my daughter’s new friends parents the other day I mentioned that one of her best friends dumped her and joined the “popular group”. They asked why and I said its because she is a little odd and quirky. She also couldn’t cope with the anxiety which turns her sometimes into silent and no fun. Their reply was to them she was normal and she should fit right in. They also get the anxiety thing. One friend was reluctant to sleep over as she doesn’t know me well. My daughter and I made sure she didn’t remain anxious. Because we can see it, manage it and understand it. Whereas at times I’ve felt embarrassed when my daughters anxious behaviours make her look like a brat child or an unfriendly one.

My daughter’s friends are the only reason that today on Day 1 of Term 3 going back to school is bearable. Last night and this morning the hand wringing and crankiness started with the rise of school anxiety. Better than it used to be. Doesn’t happen for a week and no longer any vomiting. So when she goes to school today she knows her Dyslexic friends are probably feeling the same. So don’t tell me we shouldn’t identify kids with Dyslexia or use the label. In my other blog “The Dirty D word” I have addressed all the issues. But this blog is from the heart. So don’t lecture me until you have walked in my shoes. You will never be able to understand the positives the Dyslexic community brings to these kids or families

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Dekker Delves into Dyslexia

Advocate for the introduction of the phonics check in Australia. Advocate for the teaching of evidence based literacy instruction for every child in every school. The explicit and systematic teaching of Phonemic Awareness, Phonics, Fluency, Vocabulary and Comprehension. Advocate for Dyslexia Awareness I support reputable organisations such as the Australian Dyslexia Association (ADA), Learning Difficulties Australia (LDA), the International Dyslexia Association (IDA), the FIVE from FIVE Project, and the International Foundation for Effective Reading Instruction (IFERI) AUSPELD and State-based SPELD organisations, as they all recommend the use of EVIDENCE-BASED TREATMENTS/PROGRAMS for learning difficulties. Mum to 2 delightful, amazing and creative kids. Mum to a kid with Dyslexia, Dysgraphia, Dyscalculia and anxiety. Admin of Dyslexia Support Australia Group, Dyslexia Awareness Australia and Dyscalculia Awareness Australia. Board of Directors SPELD NSW 10 Years a High School Teacher All my opinions are based not only on experience as a teacher, a mum and an administrator of Australia’s largest Dyslexia Support group but on research. I believe in the scientific method and the need for education to meet the same rigorous evidence based standards as the medical profession.

7 thoughts on “Finding your Dyslexic Tribe is priceless”

    1. Yes I subscribe to Nomanis! Excellent resource. Multilit is also excellent. Taught my niece to read over a decade ago. The multilit team have been working for decades to get evidenced based literacy instruction into every classroom. There is some excellent research on literacy that comes out of Macquarie.

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  1. My 11yr old dyslexic/dysgraphic daughter starts High School next year. My anxiety about this is through the roof and this excellent piece has meant the world to me. Thank you so much to you and I sure do love our tribe. Naming it is the least of our battles, huh?! Soldier on, all kids and parents living with LDs xx

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  2. Our journeys are so similar. I was recognising and nodding throughout the entire piece. My dyslexic child is my youngest son so when he was falling behind at the point where my other kids were taking off with their reading I knew something was amiss. It took me another 6yrs of false starts and misdirection from educators before we got a diagnosis and enormous relief for my intelligent quirky & heart-of-gold kid that it was not him that was broken. It still astounds me that so much ignorance abounds when really those educators should feel the same relief that now the student has a diagnosis there is a clear explicit and structured approach they can use in their classrooms.

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  3. Having one child with Dyslexia/ADHD and one without it’s pretty clear to me that these neurological differences exist and that using terms for these differences is useful. I think actually there’s a lot more stigma attached to the categories ‘ADHD’ and ‘ASD’ than to Dyslexia, but I think that through education this is changing, and neurodiversity is being viewed in a more positive light.

    I think, however, that we need to consider that currently we can’t easily distinguish between ‘poor reader’ and ‘dyslexic’, and that kids from disadvantaged backgrounds are not given this opportunity for a ‘tribe’ (not to mention remediation) due to lack of official diagnosis. There are a lot of Ed Psychs, academics, specialists etc out there whose main objection to the term Dyslexia is this exact issue, and I understand where they are coming from. (Although personally I am in favour of the term). Are you concerned by this issue, and if so do you have any ideas about how we can ensure all kids get help and recognition?

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    1. My other blog the dirty D word deals with the entire issue. Early identification is important and I support strongly the phonics check because i think at the very least it with improve teaching of phonics and help identify those at risk of reading failure from either dyslexia or Dysteachia. My other blog from memory does address that in australia a clear diagnosis of Dyslexia can be achieved by properly trained professionals and that we can distinguish between instructional casualties and dyslexics. The DSM actually requires 6 months of intervention. A new school learning support teacher was the first person to identify my child with poor decoding in year 2 which led us down the right path both intervention and identification. But by then she had already developed severe school anxiety and learned helplessness.

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